Tuesday, March 19, 2019

Welcome Home!

So much has happened since the beginning of this year! I can't believe we're already 25% into the year. There is no time to waste, apparently, so let's get right to it.

Rory is home from the hospital!!!!!!!!!!!






Here we are in the car, driving home together for the first time. 

So he got his breathing tube taken out on January 15. Hooray! Since then he continued to improve every week until he was given a nasal RAM cannula, which is an oxygen tube that sits just barely in his nostrils and blows in a tiny amount of oxygen. He also began to eat by mouth, so his feeding tube was put through his nose instead of his mouth so that it didn't interfere with eating. He did great eating on his own, but not enough to gain weight. So whenever he was too tired to finish eating, the rest was given through a tube.

He was discharged still on oxygen and a feeding tube. HOWEVER, just barely today we were able to take his feeding tube out, as he is a massively growing boy and does not need it anymore!!!

He now weighs 8 lbs 14 oz!!!

He is still on a very low amount of oxygen. He can breathe regular air on his own just fine, but over a longer period of time he doesn't get quite enough oxygen into his blood and it starts to affect his development.

Now, the parent life is real. :D

This is our third morning home together. We had been up at least 3 times during the night, Rory had just spit up on me and my favorite blanket, and I hadn't showered in 2 days. #bestjobever

First tummy time at home


Yesssss!!! I'm home!!!

Rory and Dad

Tough sleepy guy

He likes to sleep with one arm out. Even if we swaddle both arms in, he always manages to wiggle one out.

He's bigger than a giraffe!!

This was today. My mom helped me take out his feeding tube and replace his oxygen tubes, and while we were at it, we took some pics of "wireless" Rory. <3


So we've been doing well. We've been mostly hanging out at home, having mostly just family visit. He's still very fragile so we won't be taking him anywhere public until the end of April, when flu and RSV season is over.

Since it's his 4-month birthday today, I'll list some fun facts.

- So far he's been a very easygoing and calm baby. He doesn't cry very often, and when he does, it's not very loud. We're lucky!!

- He's been making really good eye contact lately. He even tracks a little. He likes to look at faces, lights, shadows, and...pretty much anything.

- He loves to be held and sleeps really well when being held, even if he's hungry.

- He's been pushing off with his legs lately. When someone is holding him in their lap he tries to scoot himself off!

- He looks like James!!!!


Sleeping while baby is sleeping....

I saw someone post this on Facebook the other day. This is my life right now!

But I must say that it is seriously AWESOME to live really close to my mom. Moms are the best. (Haha, see what I did there?) She, and my whole family, and James's family, have helped soooo much and it's been so much fun to share Rory with them. Rory, you are so lucky to have such a fantastic grandma!!!!


Grandma and Grandpa!

Great-Grandma aka GG!

Uncle Josh!

Great-Grandma Hyatt!

Aunt Emily!

Best Dad Ever! <3

Well, a lot of other stuff has happened between January and now, so I will be posting some more updates this week. 

Congratulations, Rory!!! :)